Doctor appointments

We had to go to the doctor and get some chest X-rays done for Jace a few days ago. I feel so bad for Jace every time we go to the doctor because it's a lot of waiting, sitting, and new scary faces. Jace always handles it like a champion! The boy is amazing! We also went and saw a doctor to get a full check up on his development. He is doing well, but probably should be saying a few more words than he is. They checked his ears and it looks like there is fluid behind his ear drums. He has had 3 ear infections and I think that he has constant ear pain. He has been having the hardest time sleeping lately and I think it's his ears. So we are going to go see a specialist for that in a few weeks. Next week we have to go get some labs done and have a normal 3 hour CF appointment on Friday. He is growing up so much! It makes me happy, but sad to see him grow up! I just love my little baby!!

AZ fun! Treatment not fun!

We recently moved to AZ for Jared to go to Midwestern Podiatry School. We really enjoyed living in Utah, but are grateful to be back close to more family. Jace is so happy to be in AZ and have a pool!! We go swimming all the time and he loves it! He is a little fish! It has been hard feeling like a single mom sometimes, but I know it will be worth it. The hardest times for me are when I have to do his breathing treatments both times instead of just the morning. Jared usually does the night treatment, but when he has to study I get to do it and it sucks!! Jace sometimes fights the treatment the whole time and is getting stronger so he pushes, kicks, screams, etc for the breathing treatment part. It is overwhelming trying to hold down a little kid. I feel like I am the worst mom ever on days where I have to literally pin him down to do something that will be make him better. Tonight was one of those nights. He usually doesn't act like this, but tonight he did and it was hard. Tonight I hate CF. But I am grateful for the medicine that is helping him stay healthier longer! He has not had to get on any antibiotics since moving to AZ!!! YAY!!! Maybe the weather here will be better for him!!

Running

Having cystic fibrosis comes with many challenges. One of these challenges is that it can be hard to breath. I went on a run with Jace the other day and I hadn't been feeling the healthiest so near the end of my 2nd mile I started having a hard time breathing. I got a lot of mucus stuck in my throat and I kept coughing. I looked down at my little boy in the stroller and wanted to cry. I was having a difficult time for this short moment, but Jace will feel like this for his whole life. I got home and just held him as tight as I could because even though he won't know any different - I do. I know his life is going to consist of hospital visits, doctor appointments, medicines, hand sanitize, etc. I love him though and will do anything I can for him!